Newspoint Linden, D.W., Trenti-Paroli, E., Doron, M.W., 2000/2010. Preemies: the Essential Guide for Parents of Premature Babies, second ed. Gallery Books, New York. Macnab, N., et al., 1998. Journal writing as a social support strategy for parents of premature infants: a pilot study. Patient Educ. Couns. 33, 149e159. Palasoftware, Inc. MyPreemie. https://itunes.apple.com/us/ app/mypreemie/id620128292?mt¼8. 2013 Social Mom Report. A 21st Century MOM Insight Series by Babycenter. http://www.babycentersolutions.com/docs/ BabyCenter_2013_Social_Media_Marketers_Handbook_US. pdf.
307 Stroll/Carry/Love, June 15, 2013. A Beautiful App for Parents of Preemies. http://strollcarrylove.com/index.php/a-beautifulapp-for-parents-of-preemies/. TechMom Tuesday, June 4, 2013. Reasons I Love MyPreemie App/Review. http://alliosnews.com/2013/06/techmomtuesday-reasons-i-love-my-preemie-an-app-review/. Twinstuff Community, May 7, 2013. A Review of the MyPreemie App. http://www.twinstuff.com/a-review-of-the-mypreemie-app/. Urbanflowerpot, July 10, 2013. Review and Giveaway: MyPreemie App. http://urbanflowerpot.com/?s¼MyPreemieþApp.
Bliss nurse update Kellie Stewart* Bliss, 9 Holyrood Street, London SE1 2EL, United Kingdom Available online 29 August 2013
In 2011 Bliss launched it’s Bliss Nurse programme with the first nurses appointed at St Georges Hospital in London. Since then we have recruited to Norfolk and Norwich University Hospital and we are thrilled to announce that in the Autumn we appointed the next two nurses to the James Cook University Hospital, Middlesbrough and Birmingham Womens Hospital and Heartlands Hospital covering SW Midlands network. The Bliss Nurses will ensure that the unit they work on provides consistent, high quality family-
centred care, including promoting breastfeeding, kangaroo care and ensuring the right facilities and help are available. With no clinical duties Bliss Nurses will have time to focus on the needs of the whole family and work with colleagues to ensure the standard of family-centred care is raised throughout their regions. For more information email [email protected]
* Tel.: þ44 (0)20 7378 5741. E-mail address: [email protected]
You said.we did Kellie Stewart Bliss, 9 Holyrood Street, London SE1 2EL, United Kingdom Available online 22 August 2013
Mothers and fathers of babies in neonatal care are on a difficult journey, often with limited control or involvement in their baby’s care. They are in a
stressful position e not only are they the anxious family members, but they are also the ‘proxy patient’, having to speak for their baby. However,
308 what is a very difficult situation can be made as bearable as possible if the effort is made to ask parents how they are during the journey, and staff show willingness to listen and learn from what families are experiencing. At Bliss we recognise how important it is to ensure parents’ insight and feedback on neonatal care is used to improve services, and we have now produced a report that focuses on this very important issue. ‘“You said. we did” e meeting the promise of measuring parents’ experience of neonatal care’ is our new report which highlights some examples of best practice within units and the need for neonatal units and networks across the country to pay particular attention to how parent http://dx.doi.org/10.1016/j.jnn.2013.08.003
K. Stewart experiences and perspective can be gathered and used to inform service planning and delivery. The report draws on information from a national survey and consultation carried out by us earlier this year, to give a snapshot of the opportunities parents currently have to feedback on their experiences of parenting a baby in neonatal care. Our report concludes with a set of key recommendations that we believe are necessary to ensure that families and healthcare professionals can work in partnership to deliver a high quality service with improved outcomes for all. For more information email [email protected]
E-mail address: [email protected]